Marathon, not a sprint

Dear friends, family and friends we have not met,

I have often been reminded by numerous health professionals that dealing with traumatic brain injuries, and the ensuing recovery process, is akin to a marathon—not a sprint. Progress is gradual, and patience is paramount.

The anxiety we feel comes from our belief that providing the best possible support for our kids requires a series of relentless sprints. Yes, we understand it’s a long haul that demands patience, but we also recognize that healthcare, ultimately, is a business. We have been exceedingly fortunate that within this business are amazing individuals who have shown extraordinary care, support, and compassion to us and our children. The nurses, doctors, therapist, nurse assistants, physical therapy, occupational therapists, speech therapists, lab, radiology and support staff, who endure our constant advocacy to ensure our children receive the best and timeliest treatment, exhibit incredible patience despite the pressure we put on them. Their capacity to empathize with our pain, and our children’s suffering, while offering exceptional support during grueling 12-hour shifts, is nothing short of remarkable.

We are caught in the paradox of striving for the ultimate destination—the best possible results for Brooks and Lauren—while navigating a multitude of milestone destinations along the way. There are numerous critical stops that require careful planning in collaboration with the healthcare system and insurance companies. This maze of challenges is navigated with a singular focus: the best possible outcome for our children, regardless of the time it takes.

During my tenure running an electric vehicle company, the transition from gas to electric was often summarized by two words: “range anxiety.” That same apprehension—wondering whether we can reach our ultimate destination and the charging stations en route—is familiar to us now. I am confident we will make it, but I also recognize this feeling is something any parent, friend, or spouse confronts in the face of traumatic injuries. Will they be okay? How long will it take? Am I doing everything I possibly can to ensure the best possible outcome?

The outpouring of support and outreach from so many has been instrumental in easing our ‘range anxiety.’ To each person who has donated, know that you are enabling my wife and me to focus on our destination, ensuring that at every stop along the way, we arrive with enough ‘fuel’ in the tank. This allows us to pause, recognize the milestones, and maintain our focus on the ultimate goal.

Brooks is doing very well working his way into rehab and is working very hard on his road to recovery. We are so happy to see his progress and his determination to the do the work.

Lauren continues to make her way towards having the tube downsized and then hopefully removed soon, which will open up the possible next destinations on her journey. She is communicating with us more frequently and we are so thankful for these improvements.

Thank you, thank you, thank you.


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